The most amazing bday!!

What a weekend!!! Friday night we went to a talent show at the high school, 4 of krystals friends are trying to raise $9000 so they can walk in the breast cancer walk in May, luckily the auditorium was pretty full, so the girls should've gotten a good chunck that night. Some amazing talent & alot of laughs & one gig that I couldn't wait for it to be over...heavy metal group that was screaming the whole time....certainly didn't help the headache any!!! Then Sat. was my birthday...35 already.....anyways Krystal had a suprise & the only thing I knew is I had to be up & ready by 9 am. It ended up being a spa treatment at Mountain View grand hotel.....OMG!!!!!!!! It was the most amazing thing I have ever experienced. Started with soaking in a tub that had tons of jets massaging the body, infused with lavender for 1/2 hour. Then off with the massage therepist for 1 1/2 hours.....that felt incredible! Hot stone massage was awesome. I don't ever remember feeling so good & relaxed. In fact I was so relaxed that I just couldn't focus on anything. Then her & I went for pizza @ one of our favorite pizza places (Scorpios). Came home & I just looked at Tim & said I need to lay down. So I rested for a couple of hours, then Tim brought me out to eat @ applebees just him & I. Then we went to grams to meet mom & the kids for cake & presents.......Brie has been babysitting & spent her own money on a beutiful necklace & bracelet set, pringles & chocolate...all of my fav's!!! Zac got me bottles of my favorite strawberrry soda with his money (they both picked out incredible cards for me also)...so sweet they took there own cash & bought me my fav's!!! Mom got me a beautiful candle set & a book about dogs, gram got me a $25 gift card to Tj maxx, hubby got me a pink set of headphones for my mp3 player & a $100 gift card. It was the most amazing birthday I have EVER had....I have such an awesome family...the really focused on making me feel good & relaxed this year. I just wish the relaxed feeling would stay...the pain & everything managed to come right back....owell I have hope that one day I will be ok.
Last night started another new med. I absolutly hate it but won't give up yet. I woke up so dizzy & lightheaded, so tired & worn it has lasted almost all day & I took it at bedtime like suggested. The only thing about it is I did manage to get a couple hours of sleep compared to the usual not much. So there is my positive for that! This week Krystal will have her tilt table test tomorrow & her stress test on Thurs. I pray they find out something so she can start having a normal life. Going to go create now...have a fantabulous day

OMG!

What a long few days it has been around here! Sat. morning Tim & Zac were up bright & early to start chopping all the ice off the roof because we sprung a few leaks in the girls room & bathroom again...we were so dissappointed because Tim & dad spent all that time putting on a brand new roof this fall, but it's because of the heat loss in the house from under the roof or something like that. So that took over 4 hours to do, then he had to help with my moms roof for the same reason. Krystal & I laid low all morning as neither of us were feelin that good. I've determined super bowl sunday is not a good night for this family, last year my husband thought he was having a heart attack so we missed it, this year Krystal somehow popped out the joint between her pelvic bone & back so we were in the ER that night! Luckily before that we had a pretty good family day, Tim & I decided to take gram, mom, & Rich to Hoagies to try our favorite little resturant & yup they are hooked to...the food is soooooooo good. The kids were all gone to different location, so it was just adult time (I almost forgot what that was like). Yesterday was on the road at 7 to meet with yet another dr. in Dart. he gave me a prescription for Lidoderm patches for relief in my neck...can't wait to try those tonight. Then it was fly back up the highway to get Krystal to a chiropracter for 12:30 in franconia....come to find out she popped out the joint on both sides, her left leg was over 2 inches shorter than the right. She has to go back tomorrow(wed) to try to get it placed back in. apparently it will take 3 times this week & 2 times next week & so on. This morning we had to meet with the cardiologist for krystal & will be starting tons of testing. Tomorrow is a ecocardiogram, next week is stress test, then tilt table test, they will be hooking her up on monitor for 30 days & so on...sounds like it may be able to be corrected with meds or surgery, so that's the positive news....but they have to find out exactly what it is she has. poor kid...i pray she gets a break from all this crap soon....then we have to go back to the oncologist again. owell so that's it for now...phew i'm over exhausted replaying it all again...

why today?????

this is a beautiful bouquet of flowers Tim suprised me with Sat. night when he got home. First question what did you do??? LOL Of course today I have an appointment I can't get out of due to workmans comp & it's in lincoln so I have to travel through the notch....just a wee bit nervous.....ok a whole lot of nervous. any one that knows me knows I am terrified of winter weather. Yes my brother will be driving but it doesn't make it any better, so not looking forward to this at all! Seems how I'll be good & tense that will make the pain level esculate more than I already am in....owell.

I'm still having fun creating the layouts for my kids"all about you from a to z" I'm focusing on hopefully finishing zacs tonight, dinner is already in the crock pot....pot roast, carrots & potatoes...so I should be able to just relax & work on that while hubby will be out snowblowing the driveways. The kids are hoping to have a snow day tomorrow & play outside.We were finally able to buy them sleds...they were so hard to find anywhere this year & quite pricey too. Maybe they'll get Uncle to go play with them....tonight Rich & Krsytal are cooking chicken cordon bleu together...it's a special tradition they try to do when he's home. Time to get ready for that dreaded trip...LIVE, LAUGH, & LOVE.

a good day....

I CANNOT BELIEVE WE ARE HEADING INTO ANOTHER DEEP FREEZE THIS WEEK...I CANNOT WAIT FOR SPRING TO GET HERE. TODAY ZAC & I WERE THE ONLY ONES HOME SO WE WENT TO THE MOVIES.....I HAD NEVER BEEN DURING THE DAY WEIRD WALKING OUT & IT STILL BE DAYLIGHT. WE SAW MALL COP, VERY CUTE & DEFINATLY APPROPRIATE FOR KIDS. GRANTED SITTIN IN A MOVIE THEATRE IS NOT EASY FOR ME TO DO, A LOT OF WIGGLING TRYING TO GET COMFY, BUT THE PAIN IS WORTH THE QUALITY TIME I GOT TO SPEND ALONE WITH MY WONDERFUL SON! USUALLY IN HIS FREE MOMENTS FROM SCHOOL HE'S BUSY DOING CHORES & WORK AROUND HERE (BEING THE MAN OF THE HOUSE:) ) SO I FIGURED TRY TO DO SOMETHING FUN & THAT I WAS ABLE TO DO. THEN WE WENT FOR LUNCH....HE IS ADDICTED TO HADDOCK RIGHT NOW, SO HE HAD GOOD OLE FISH & CHIPS, I STUCK WITH A CALZONE.
ONE OF THE PROJECTS I'M WORKING ON IS LAYOUTS FOR EACH ONE OF MY KIDS...CALLED A TO Z ALL ABOUT YOU....YOU WOULD THINK IT WOULD BE SIMPLE TO THINK UP WORDS WITH THE BEGINNING LETTER OF THE ALPHABET....IT IS FOR SOME WORDS BUT OTHERS IT IS A CHALLENGE. ALSO I HAVE NOTICED IT HAS BROUGHT ON MANY EMOTIONS OF SMILES & TEARS, MAKES ME REALLY THINK ABOUT HOW GREAT EACH OF THE 3 ARE & HOW BLESSED I AM THAT THEY ARE MY CHILDREN....ENJOY YOUR WEEKEND & REMEMBER HOW SPECIAL EACH ONE OF YOUR CHILDREN ARE IN THERE OWN UNIQUE WAYS.

too funny

LAST NIGHT TIM HAD TO WORK LATE & THEN HAD TO STOP AT MY DADS TO SET UP A NEW COMPUTER (LUCKY DAD GOT DSL)...KRYSTAL IS GETTING VERY ANXIOUS TO GET HER ROOM DONE SO SHE CAN MOVE IN, SO SHE ASKED IF SHE & BRIE COULD GO SAND THE WALLS & CEILING.....TIM JUST HASN'T HAD THE TIME & I OBVIOUSLY CAN'T DO IT, SO I SAID SURE WHY NOT....I COULDN'T HELP BUT TAKE A FEW PICTURES OF HER WHEN I COULD STOP LAUGHING.

DARTMOUTH WENT OK, ANOTHER PAIN KILLER TO TRY & AT LEAST THIS ONE ISN'T SUPPOSE TO KILL MY KIDNEY & LIVER. I'VE BEEN EATING YOGURT FOR LUNCH & PUTTIN THE OLE' CRANBERRY JUICE TO HOPEFULLY HELP FLUSH OUT THE BAD STUFF. I SWEAR TO GOD THEY MUST OF PUT A MILLION POT HOLES & BUMPS IN THE ROADS ALL THE WAY DOWN, I FELT EACH & EVERY ONE OF THEM & WAS IN SOOOOOOO MUCH PAIN & IN TEARS BY THE TIME WE GOT THERE...TIM WAS TRYING TO AVOID AS MUCH AS HE COULD BUT IN THE NO. COUNTRY THAT IS ALMOST IMPOSSIBLE.

YESTERDAY I JUST DID A LOT OF RESTING & WORKED A LITTLE ON A SCRAPBOOK LAYOUT. TODAY I HAD LUNCH WITH MY MOM & GRAM WHICH WAS VERY NICE, IT'S BEEN A VERY LONG TIME SINCE WE HAD DONE THAT. KRYSTAL & ZAC HAVE BEEN DOING MID TERMS ALL WEEK LONG & ARE GETTING BURNT OUT FROM ALL THE TESTING & STUDYING...THEY GET OUT OF SCHOOL AT 11 TOMORROW. MY BRIE HAS DISCOVERED THE INTERNET AT SCHOOL & SET UP HER OWN EMAIL....THAT GIRL IS JUST WAY TO SMART. I SWEAR SOMEDAYS SHES A 30 YR. OLD TRAPPED IN A CHILDS BODY!!! WE'RE ALL ENJOYING OUR FAVORITE WINTER ENTERTAINMENT ON TUES/WED NIGHTS...AMERICAN IDOL....LOVE THAT SHOW!!! BE CREATIVE....

Today....

HOW EXCITING THAT TODAY IS THE OFFICIAL DAY OF CHANGE FOR OUR WONDERFUL COUNTRY! I AM SOOOOOO HAPPY BUSH IS OUT OF OFFICE AS OF TODAY, THIS DAY COULDN'T COME QUICK ENOUGH FOR ME. JUST A FEW UPDATES....FRIDAY MOM WENT TO DART. TO SEE THE EYE DR, SHE ABSOLUTLY CAN DO NOTHING FOR A COUPLE OF WEEKS SO HOPEFULLY HER EYE WILL HEAL ITSELF, NO PROMISES BUT THERE IS A LITTLE HOPE SHE WILL REGAIN FULL SIGHT WITH NO FUTURE PROBLEMS. KRYSTAL WILL BE STARTING WITH THE CARDIOLOGIST ON FEB 3RD. WE PRAY FOR ANSWERS FOR OUR LITTLE GIRL, SADLY THERE WILL BE ALOT OF TESTING SHE WILL HAVE TO ENDURE AGAIN, BUT TO FINALLY GET STRAIGHT ANSWERS TRULY WILL BE A BLESSING. OF COURSE WE STILL HAVE TO WATCH THE BLOOD WORK & THE SWOLLEN LYMPHNOIDS VERY CLOSELY, SO WE CAN'T CANCEL OUT THE CANCER SCARE AS OF YET. THE SEIZURES STILL ARE NOT UNDER CONTROL, BUT THE NEURO HOPES THAT IF WE CAN FIX THE HEART IT MAY HELP WITH THE SEIZURES & CHRONIC MIGRAINS.
HOPE EVERYONE MANAGED TO STAY WARM DURING THAT FREEZE WE WERE IN FOR A FEW DAYS, 3AM FRIDAY WE HAD OUR FRIEND GENE AT OUR HOUSE TO FIX THE FURNACE....COME TO FIND OUT THE FUEL FILTER OUTSIDE ON THE TANK WAS ALMOST COMPLETLY FROZEN, SO THEY HAD TO GO OUT & WORK IN THE -38 DEGREE WEATHER. LUCKILY IT WASN'T HAVING TO REPLACE THE WHOLE UNIT... SATURDAY, WE HAD TO GO GET MORE FUEL & TOOK THE KIDS TO HOGIES...TIM & I ARE SO ADDICTED TO THE GARLIC DOTS....THERE FOOD IS SOOOOOOO YUMMY. SUNDAY IT SNOWED ALL DAY, BUT WE DIDN'T GET AS MUCH AS EXPECTED. YESTERDAY THE KIDS WERE HOME FROM SCHOOL, WE LOST POWER FOR QUITE A WHILE, LUCKILY THE SUN WAS SHINING THROUGH THE WINDOWS TO KEEP THE HEAT IN....POOR ZAC WAS IN THE SHOWER WHEN WE LOST IT, SO HAD TO JUMP OUT WITH SHAMPOO STILL IN HIS HAIR..LOL...TODAY ANOTHER TRIP TO DARTMOUTH FOR ME WITH MY NEURO. OH GOODIE MORE PILLS TO TAKE! MY STOMACH IS TAKEN A BEATEN FROM ALL THESE DIFFERENT MEDS....I HATE PILLS & WAS ALWAYS AGAINST THEM, BUT IF SOMEHOW I CAN NUMB SOME OF THIS PAIN I'LL TRY IT. DEFINATLY SICK OF LIVING WITH THIS NON STOP EVERYDAY PAIN, BUT MY DAUGHTER HAS BEEN VERY INSPIRING TO ME, I SEE WHAT SHE LIVES WITH EVERYDAY & SHE HAS SUCH A GREAT ATTITUDE THAT SHE MAKES ME STRONGER. I DO MISS MY DAILY LIFE OF BEING ABLE TO DO TONS OF COOKING, CLEANING, WORKING & BEING WITH THE PEOPLE I THOUGHT WERE FRIENDS. BUT I WILL GET THROUGH THIS & I ENJOY THINKIN OF THINGS I WANT TO CREATE & TRY WORKING ON PROJECTS A LITTLE AT A TIME.....MY WORD FOR THE YEAR IS "BELIEVE"...I TRY TO JUST KEEP THAT IN MIND EVERYDAY.

quick update

BABY IT IS COLD OUTSIDE & ONLY GONNA GET WORSE THE NEXT COUPLE OF DAYS!!! HOPE EVERYONE MANAGES TO BEABLE TO STAY INSIDE & KEEP WARM. KRYSTAL HAD HER APPT. WITH DR. UMA YESTERDAY, HE INCREASED THE SEIZURE MEDS & ALSO BELIEVES IT COULD BE HER HEART TOO, SO NEXT STEP IS TO SEE THE CARDIOLOGIST....I PRAY SOMEONE FINDS OUT ANSWERS SOMEWHERE SO THIS POOR CHILD CAN HAVE A NORMAL LIFE. MY MOMS' EYE IS GETTING WORSE, SHE HAS LOST MOST SIGHT IN IT, I FEEL SO HELPLESS...CAN'T HELP MYSELF TO ANY RELIEF FROM THE DAILY PAIN, CAN'T HELP MY BEAUTIFUL DAUGHTER OR MY MOM.....SOMETHING HAS GOT TO GIVE SOMEWHERE. I AM STILL TRYING TO KEEP WITH MY GOAL OF FINDING A POSITIVE IN EVERYDAY & HAVE BEEN TRYING TO KEEP A DAILY JOURNAL TO VENT, WRITE ABOUT THE GOOD & BADS OF EVERYDAY...GRANTED I'VE MISSED A FEW DAYS, BUT I'LL KEEP AT IT.
ZAC STARTED HIS RIFLE TEAM WITH JROTC TONIGHT, SO HE'S EXCITED ABOUT THAT. I'M HAPPY HE IS FINALLY INVOLVED IN SOMETHING FOR HIM. HE HAS TURNED INTO SUCH A WONDERFUL YOUNG MAN THIS YEAR, ALWAYS TRYING TO HELP HIS MAMA & DOING MANLY THINGS AROUND HERE & FOR HIS GRAMMIE THAT WE CAN'T DO. TIM BEING GONE SO MUCH DOESN'T LEAVE HIM MUCH TIME FOR ALL THE HONEY DO THINGS & I TRY NOT TO BURDEN HIM MUCH ONCE HE GETS HOME AFTER A VERY VERY LONG & STRESSFUL DAY AT WORK. HAVE A GREAT DAY & KEEP WARM!